The Canadian Cerebral Palsy Registry and Early Detection Toolkit (EDIT-CP)

The EDIT-CP toolkit includes early attributes that can be detected by primary care providers and by caregivers The EDIT-CP toolkit includes evidence on more than 20 early interventions, for clinicians and for families.

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Early detection and evidence-based early interventions are key to better recommendation.The Canadian Cerebral Palsy Registry and EDIT-CP Toolkit expanded early detection efforts by integrating standardized screening tools into routine neonatal and primary care, ensuring that CP is identified and treated as early as possible. EDIT-CP toolkit is meant to rapidly mobilize existing evidence on early identification and early interventions for children diagnosed with cerebral palsy.

It is being co-created in partnership with knowledge users (parents, frontline clinicians) to ensure it is accessible and user-friendly. It targets two groups: i) primary care/general population of young children (low risk), and ii) neonatal ICU graduates who are followed in neonatal follow-up programs (high risk). Authentic partnerships with families, clinicians, experts and programs have been instrumental in mobilizing new knowledge for rapid uptake, to optimize outcomes for children and families.

Published on

September 18, 2025