The Canadian Cerebral Palsy Registry and Early Detection Toolkit (EDIT-CP)

The EDIT-CP toolkit includes early attributes that can be detected by primary care providers and by caregivers The EDIT-CP toolkit includes evidence on more than 20 early interventions, for clinicians and for families.

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Close-up of mother's hand holding newborn baby's hand

Early detection and evidence-based early interventions are key to better recommendation.The Canadian Cerebral Palsy Registry and EDIT-CP Toolkit expanded early detection efforts by integrating standardized screening tools into routine neonatal and primary care, ensuring that CP is identified and treated as early as possible. EDIT-CP toolkit is meant to rapidly mobilize existing evidence on early identification and early interventions for children diagnosed with cerebral palsy.

It is being co-created in partnership with knowledge users (parents, frontline clinicians) to ensure it is accessible and user-friendly. It targets two groups: i) primary care/general population of young children (low risk), and ii) neonatal ICU graduates who are followed in neonatal follow-up programs (high risk). Authentic partnerships with families, clinicians, experts and programs have been instrumental in mobilizing new knowledge for rapid uptake, to optimize outcomes for children and families.

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