Inclusion Alberta has requested updated information. In the absence of updated information, Inclusion Alberta launched a survey in response to the growing number of individuals and families who cannot secure the support they require, to hear their experiences and gather their feedback. 540 individuals from 79 of Alberta’s 87 provincial electoral districts completed the survey in October and November 2024.
This report presents findings from our survey and calls upon the government to take immediate
action to ensure PDD fulfills its purpose for those it was intended to support…
According to survey results, the FSCD and PDD programs provide critical and life-changing supports to enable children and adults with disabilities and their families to sustain themselves and participate fully in our communities…if and when they can be accessed.
However, both systems have become unresponsive and bureaucratic, failing to provide families with timely access to adequate support. The survey results provide new clarity on how individuals with intellectual disabilities and their families are increasingly being let down by PDD and FSCD.
PDD:
- Remove the urgent and critical needs criteria.
- Restore transparency and accountability to PDD. This will begin with committing to:
- Publicly report the number of individuals who are PDD eligible who do not receive services, and how long they have waited without services.
- Follow up yearly with all individuals waiting for PDD services to update their Outcome Plan, ensuring that vulnerable individuals do not lose contact with PDD while waiting and that PDD’s wait list remains accurate.
- Establish and report on performance indicators that measure whether PDD is achieving its legislated mandate.
- Introduce robust accountability and performance measurement for all contracts.
3. Increase PDD funding to fully account for inflation and population growth and ensure sufficient funding to appropriately serve eligible Albertans as the legislation intended.
Request a meeting by calling the MLA’s office, stating that you are a constituent in their riding, and you are interested in discussing issues of importance to children and adults with intellectual disabilities and their families.