The Canada FASD Research Network National Dataform Project—a comprehensive database of individuals living with FASD across Canada—is helping researchers gain a better understanding of FASD. The project started in 2015 and is a collaboration between KBHN and CanFASD and is the first database of its kind in the world to collect and analyze data on the functional diagnosis and treatment recommendations for individuals with FASD.
The systematic and country-wide collection of FASD-related information allows us to understand the profile of Canadians with FASD, and better link interventions with areas of need. This information is also critical in helping to identify gaps in practice and policy to better support individuals with FASD as well as the families and communities that support them.